Sunday, August 25, 2013

13 months!

Today, Michael is 13 months old! It is so hard to believe. Time has just flown by, but at the same time, it feels like he's always been here. In our lives. It's funny to think Auggy won't remember life without Michael.
People are drawn to Michael. Strangers. He has a special magnetism that really draws people in. He's cute, for sure, but there's something else, in his overall being that just sucks you in. Everywhere we go, people are enamored by him. One of  Auggy's school mommies said it: it's like you just want to be in his world! He truly is special!
It's clear to me now, that people can see he has DS. I've had strangers talk to me about it, just casual, as if its already established by everyone that he has it. And, I've realized it doesn't bother me. I wasn't sure how I was going to feel when it came up, but, the thing of it is... I don't care what other people think. My Michael is so perfect to me, that anyone who doesn't agree can take a hike! What amazes me, though, is that people are so warm and loving. I guess I am the ignorant one, who thought people would reject Michael when they found out he was different. Maybe I am the last one to catch on: DS is OK!
And the world of people that has opened up to me since his birth, well, I am so grateful for that, too! I adore all his little friends in his baby groups! Babies of different special needs, as well as their families. People I would have never met, and now, they are part of our family, too. I see their strength and it gives me strength.
I just returned to school for the first time in 15 years! I am going to become a massage therapist! I had my first class, which also means I spent my first day apart from Michael. It went pretty good! I was really nervous about it. About the new adventure, but, mostly about being separate from Michael for so long. I saw him during my break for lunch so I could nurse him, thankfully! He seemed to miss me, but he wasn't distraught, so, I feel good about it! I'm excited about massage, too, because it could prove to be beneficial to some health problems he may develop over time. And, who knows? Maybe that's the path I'll take during school, to help others with disabilities. I haven't decided yet.
Anyway, life is just flying by, and things are pretty good!

Sunday, August 18, 2013

Food

Now that Michael is over a year old, we begin the process of really opening him up to different foods. You would think I would be excited about it! After all, I was a chef in my previous pre-child life, shouldn't I be thrilled about developing my child's palate? The truth is, I am nervous. And a bit lazy. He is so picky about texture, still wanting a total purée, do I really want to go to the trouble to make something special, filled with animal protein and yummy broth, only to have him hate it? I have to snap out of it. I know. Forget about Auggy eating vegetables! Sometimes if I'm really sneaky, I can get him to eat a little.
I need to get us all on a better eating track, though! Michael and kids like him are so prone to obesity and diabetes, I want him, and us, to lead healthy lives! I would love to have a gluten free, sugar free household. There's lots of research to be done! I need to weed through all the fads and find the real nutritional info. I don't buy into the "organic" stuff so much anymore, but I do want to buy as much whole food as possible and make everything at home. I try to do that now, with the exception of bread and mayo, I pretty much do.
I remember when Auggy was born, we said we would never let him eat so many things! Reality set in and we've had to make some compromises. But, I have held fast to him not eating at places like Macdonalds, though. And everyone in the family knows they will be disowned if they take him, too!
Is it terrible that I compare myself to other moms? Like, when a mom that seems to have it all together, admits that she takes her kid to Macdonalds or let's them watch extra tv when she needs to get stuff done...I feel better about myself? I guess I feel guilty sometimes for some of the shortcuts I take. Am I just making excuses for myself when I let Auggy watch tv, or get pizza, or buy pre made enchilada sauce? Or am I just like every other mom, who sometimes just needs a break? If I'm being honest, I guess it's a little of both. But, seriously, how many games of Candyland or Superwhy can a mom play before she needs to do something "adult?" Or how many games of hide and seek?
Auggy started back to preschool last week, and Michael is back in his therapy sessions, too. We are super busy! But, I have a whole month of Aug in school before I start school myself, so I intend to enjoy these mornings I have to myself! Summer was fun and it flew by, but it is nice to be back on a busy schedule.
And Michael impressed everyone he hadn't seen for the last month with how much he's developed! He is cruising now, officially. I am confident he will be walking before Auggy turns 4, in 2 1/2 months! So proud of both my boys, but especially my little bug! He's rocking everyone's world!

Auggy's first day back at preschool

A future in computers?

Happy boy!  He's so excited to be standing!


Wednesday, August 7, 2013

I am a jerk

It's time to face the inevitable: I am a jerk. I think about myself way too much! I'm not sure when it happened, but one day, I went from being not too terribly selfish, to being downright nasty. I find myself thinking things like, "No one else has days like mine" or "No one else really understands what it's like." What a joke! Millions of people not only get it, but have it a million times worse! Can I really be this lame? It's time for a reality check, lady!
I have an amazing husband who works his ass off so I can stay home and enjoy every minute with my boys. I have two beautiful boys whom I adore more than I thought possible! I live in one of the most beautiful places in the world. I have great friends who are supportive and would help me any time I needed it. I have so much, too much to list. And I am grateful, really I am! But, when my three yr old is being sassy and defiant and it's barely light out, it's hard to keep it in perspective. But, I'm going to try harder. Come up with a thankful mantra or something, so when I'm in the trenches, I can say it, and come back to center.
One thing that always helps is a smile from Michael. This kid is so amazing! This last few weeks, he has hit so many milestones! He got his first tooth, he pulled to stand, he got his first haircut, and yesterday, he cruised a couple steps! I swear, he will be walking in the next couple months if we work hard enough! I am so proud of my little bug!!! In fact, he is doing so well, it's hard to even believe he has DS. I mean, I KNOW he does, but, he's keeping up so well, I keep wondering when the ball is gonna drop. When is it really going to hit me? Will I be the selfish jerk I seem to have been of late? Or will I be cool? Will I just roll with it? Or...will I even notice? Maybe the ball has dropped and I am just so in love with my Michael, that I don't see it?


Can you blame me? Look at that little angel! He is perfect.
Maybe I am delusional. Kidding myself? Dave says he will never go to college, that when my friends tell me their kids didn't walk until they were 13, 14, 15 months old...they are just trying to make me feel better. Can that be true? Why would they try to make me feel better? I know he has DS. I know there will be delays, so why would I need consoling? I feel like he's kicking butt! He is developing on the typical spectrum...maybe on the low end, but still. See? Is that deluding myself? Dave says everyone has said words by one yr, that I just don't remember Auggy as a baby, but I do! Auggy was so advanced, talking early, walking by 10 months. How do I know if I'm just being crazy? Or does it even matter? Maybe all that matters is that I am proud of my little guy. I don't compare him to typical kids, but I want to treat him like one. I don't want to coddle him and just say, "well, he has DS, so he just can't do....." I want him to do anything he wants to do!
Maybe I am being selfish, I want him to be the most badass DS kid there is, but that desire will also push him to be the best. Doesn't he need that? Won't he be more likely to succeed? I mean, if I just lay down and say he can't because he has DS, aren't I just ensuring that he won't? No one ever got anywhere by giving up. Maybe there will be disappointments along the way, but I'd rather be disappointed from trying than from not. So, I am going to try to be less selfish, but, also...not. 
As promised, here are some birthday pictures, and a few more from our week of fun!

Michael's big cousin/birthday twin Ashley





Birthday hike really wore him out!

conked out at Carmel Beach

Beach bumming in Santa Cruz

My future surfer